Malunga nophando

Umbutho wethu welungu laseJamani Urtikaria-Helden (I-Urticaria Heroes) iqhube uphando ukubonisa indlela abantu abachatshazelwa ngayo yi-urticaria yezinga iindlela zonyango zangoku ngokwembono yabo kunye nokulinganiselwa kwabo kwesi sifo. Uvavanyo lujolise ikakhulu eJamani kodwa lwafumana iimpendulo ezivela kwamanye amazwe kunye nemimandla. Nalu ujongo olwandisiweyo kwizinto ezifunyanisiweyo.

Uphando ibingengomsebenzi wemfundo nje kuphela kodwa ibingumzamo onomdla wokubamba imiba entsonkothileyo yokuphila neurticaria.

Injongo ephambili ye-Urticaria Heroes kukuncedisa abo bachaphazelekayo yimeko. Olu phononongo lwenzelwe ukulinganisa indlela abantu abane-urticaria abazibona ngayo iindlela zonyango lwangoku kunye nokunciphisa kwabo ngenxa yesi sifo. I-Urticaria Heroes inethemba lokuqhubela phambili uphando lwe-urticaria kunye nokuphuhlisa iindlela zonyango ezisebenzayo ngokuphakamisa ulwazi loluntu kunye nokuchaphazela uluntu lwezonyango kunye nabenzi bomgaqo-nkqubo. Oku kukwabandakanya ukuphuhliswa kwamayeza angcono kunye nokuvunywa ngokukhawuleza ukubuyisela iindleko zokusetyenziswa kwamayeza angekho ileyibhile.

Ukongezelela, ukuqatshelwa kwe-DoD (i-degree of disability) ubuncinane i-50% yeeofisi zombuso zempilo kunye nemicimbi yentlalo kufuneka ifunwe kwimeko ye-urticaria enzima.

Olu phononongo lubonisa imida emikhulu abo bachaphazelekayo banayo ngenxa ye-urticaria. Olu phononongo lukwajongwe ukufumanisa kuba akukho msebenzi wokufundisa waneleyo owenziwayo ngesi sifo.

Iziphumo eziphambili

  • Amanani: Uninzi lwabaphenduli ngabasetyhini, kunye nenani elibalulekileyo kuluhlu lweminyaka engama-30-49. Iimpendulo zavela kumazwe ahlukeneyo, kwaye uMntla Rhine-Westphalia unommeli ophakamileyo.
  • Ubude be-Urticaria: Abaninzi abaphendulayo baye bahlala ne-urticaria iminyaka eyi-1-5, kodwa inani eliphawulekayo liye lafumana imeko ngaphezu kweminyaka engama-20.
  • Iintlobo ze-Urticaria: I-urticaria engapheliyo yayiyeyona nto ixhaphakileyo. Abaninzi abaphendulayo babengaqinisekanga ngezinto ezibangela imeko yabo, begxininisa imfuno yemfundo engcono yesigulane.
  • Unyango kunye noxilongo: Abaninzi abaphendulayo bavakalelwa kukuba i-dermatologists ayizange ibathathele ingqalelo. Abaninzi banikwa ii-antihistamines, kunye neziphumo ezixubileyo malunga nokusebenza kwazo.
  • Impendulo esuka kuDermatologists: Ireyithingi iyonke yeedermatologists yayingu-3.3 ngaphandle kwe-5, ebonisa indawo yokuphucula ukunakekelwa kwesigulane. Izigulana ezininzi ziziva zingaziswanga ngokwaneleyo ngemeko yazo kunye nonyango lwayo.

Ubalo lwabantu: Ukujongwa ngokusondeleyo

Uphando luye lwatsala uluhlu olwahlukeneyo lwabaphenduli. Ngelixa uninzi olubalulekileyo ibingabasetyhini, ukusukela kuluhlu lweminyaka engama-30-49, kubalulekile ukuqaphela ukumelwa okuvela kumazwe ahlukeneyo, kunye noMntla weRhine-Westphalia okhokela ipakethe. Ukwahlukana okunjalo kugxininisa ukufikelela jikelele kwe-urticaria, echaphazela abantu kwiimvelaphi ezahlukeneyo kunye nemimandla.

Ngelixa uphando lutsale abantu abahlukeneyo, uninzi lwabaphenduli yayingabasetyhini, ubukhulu becala abaphakathi kweminyaka engama-30-49. Nangona kunjalo, ukumelwa okuvela kumazwe ahlukeneyo, ngakumbi ubukho obuphawulekayo obuvela kuMntla weRhine-Westphalia, bubungqina bokungakhethi buso be-urticaria. Ichaphazela abantu abavela kuzo zonke iinkalo zobomi, ukudlula iminyaka, isini, kunye nemida yejografi.

Ubude bexesha kunye neentlobo ze-Urticaria

Ubomi obude be-urticaria kubomi bezigulane bahluka, kwaye abaninzi baye bahlala nale meko iminyaka eyi-1-5. Nangona kunjalo, inani elimangalisayo lichaze ukuba linaso esi sifo ngaphezu kwamashumi amabini eminyaka, ligxininisa ubume obungapheliyo be-urticaria kwabanye.

Ngokuphathelele iintlobo, i-urticaria engapheliyo yavela njengeyona ndlela iphambili. Nangona kunjalo, abaninzi abaphendulayo bavakalisa ukungaqiniseki malunga nezinto ezibangela imeko yabo. Oku kwalatha kwimfuno engxamisekileyo yokuphuculwa kwamaphulo okufundisa izigulana namaphulo okwazisa.

Unyango, Uxilongo, kunye namava esigulane

Ubudlelwane besigulane nogqirha bubalulekile ekulawuleni nayiphi na imeko yezonyango. Nangona kunjalo, abaninzi abaphendulayo bavakalelwa kukuba iinkxalabo zabo zichithwa okanye zingathathwanga ngokungathí sina ngoogqirha besikhumba. Nangona i-antihistamines yayiyeyona mayeza achazwe ngokuqhelekileyo, ukusebenza kwawo kwahluka phakathi kwezigulane.

Ingxelo evela kwiidermatologists ibonise ukulinganisa okuphakathi kwe-3.3 ngaphandle kwe-5. Oku kubonisa indawo enkulu yokuphucula ukhathalelo lwesigulane, unxibelelwano kunye nezicwangciso zonyango.

Iinkalo ezininzi ze-Urticaria

Uphando lubonise i-spectrum yamava malunga nobude kunye neentlobo ze-urticaria. Abaninzi abaphendulayo baye bajonga imingeni ye-urticaria iminyaka eyi-1-5. Nangona kunjalo, isityhilelo esibuhlungu yayilicandelo labathathi-nxaxheba abaye banyamezela le meko ngaphezu kweminyaka engama-20, begxininisa ubume obungapheliyo be-urticaria kwabanye.

I-urticaria engapheliyo yachongwa njengolona hlobo luxhaphakileyo. Nangona kunjalo, ilifu lokungaqiniseki ngokumalunga nezinto ezibangela ukuba abantu abaninzi abaphendulayo likhwelo elicacileyo lamanyathelo okufundisa izigulana omelele ngakumbi kunye nokuqhubela phambili kokwazisa.

Ukujonga iMedical Landscape

Ukutshintshatshintsha phakathi kwezigulana kunye nababoneleli ngezempilo badlala indima ebalulekileyo kulawulo lwezifo. Okothusayo kukuba, uninzi lwabaphenduli baziva ngathi amazwi abo acinyiwe okanye akahoywanga ngoogqirha besikhumba. Ngelixa i-antihistamines yavela njengommiselo wokuya kugqirha, ukusebenza kwawo kwakuyingxowa edibeneyo phakathi kwezigulane.

Impendulo kwiidermatologists, kunye ne-avareji yokulinganisa ijikeleza malunga ne-3.3 ngaphandle kwe-5, luphawu olucacileyo lomsantsa kukhathalelo lwesigulane kunye nonxibelelwano. Le ngxelo ikhuthaza ukujongwa ngaphakathi kuluntu lwezonyango, ikhuthaza utshintsho olubhekiselele kukhathalelo lovelwano ngakumbi kunye nesigulane.

isiphelo

Iziphumo ezivela kwi-Urticaria Heroes 2023 Survey zigxininisa imingeni ejongene nabo bane-urticaria kunye nesidingo sokunakekelwa kwesigulane esingcono, imfundo kunye nophando. Ngokuqonda amava abo bachaphazelekayo, sinokusebenzela kwixesha elizayo apho i-urticaria iqondwa kakuhle kwaye ilawulwe.

UPhando lwe-Urticaria Heroes 2023 lubonisa ngokucacileyo imingeni, amathemba, kunye neemfuno zabo baphila ne-urticaria. Iziphumo zigxininisa imfuno engxamisekileyo yokhathalelo olungcono lwesigulane, uphando olunzulu ngakumbi, kunye nemfundo ebanzi yezigulana.

Ngokuphonononga nzulu kula mava, sinokuvula ngokudibeneyo indlela yekamva apho i-urticaria iqondwa ngcono, ilawulwe, kwaye iphathwe ngayo. Uhambo lunokuba lude, kodwa ngomzamo ohlangeneyo kunye nokuqonda, ikamva eliqaqambileyo kwizigulane ze-urticaria zifikeleleka.

Ukukhangela Phambili: Indlela eya kwingomso eliqaqambileyo

Imibono evela kwi-Urticaria Heroes 2023 Survey zombini isityhilelo kunye nokubizelwa kwisenzo. Bagxininisa imfuneko ecinezelayo yendlela eneenkalo ezininzi: ukhathalelo oluphuculweyo lwesigulane, uphando olungqongqo, kunye nemfundo yesigulana epheleleyo.

Ngokuzintywilisela kula mabali, sinokwenza ikhondo elisingise kwixesha elizayo apho i-urticaria ingengombhalo osemazantsi nje kwiincwadi zezifundo zonyango kodwa iyimeko eqondwayo, ilawulwe, kwaye iphathwe ngobunzulu novelwano olufunekayo. Indlela ehamba phambili ingaba nemingeni, kodwa ngemigudu edibeneyo kunye nokuzinikela okungaguqukiyo, ihlabathi elinolwazi kunye novelwano kwizigulane ze-urticaria zisondele.

Khuphela ingxelo yokuqala.

Ingxelo yokuqala nayo yonke idatha eqokelelweyo kwaye ichazwe kwisaveyi iyafumaneka ukukhuphela (ngesiJamani) ngeqhosha elingezantsi.

Khuphela ingxelo

Siyakukhuthaza ukuba uqhagamshelane no-Urtikaria-Helden (https://urtikaria-helden.de/) ngolwazi oluthe kratya malunga neziphumo kunye nendlela yokusebenza ukuphumeza izisombululo kuzo zonke ezi mfuno zingafikelelwanga.

Sifuna ukubulela i-Urtikaria-Helden ngokuvumela i-GAAPP ukuba ikhuthaze olu phando kumazwe ngamazwe kwaye ibonise iziphumo kuluntu lwehlabathi.