Esi siseko siquka amalungu alithoba zombini ukhathalelo lwempilo kunye nokhathalelo lwezempilo. Injongo yesiseko kukusindisa ubomi, ukudala ulwazi, nokufundisa abasebenzi bezempilo kwaye sikwaqeqesha uluntu.- I-V-Life Savers Foundation inombono kunye nomsebenzi wokusindisa ubomi bomntu wonke kwaye uphendule ngokufanelekileyo kwiimfuno ezikhulayo. kubomi obungcono babantwana, ulutsha, abantu abadala, abasetyhini abasempilweni kuphuhliso loluntu; ukusebenza njengendawo yolonwabo kuwo onke amangenelo ophuhliso lwangaphandle kwiindawo zasezidolophini nezisemaphandleni; ukuchonga, ukucwangcisa nokulawula iiprojekthi zoluntu ezijolise ekukhuthazeni ubuninzi, obufikelelekayo, umgangatho wobomi kunye nentlalontle yoqoqosho loluntu ngendlela esemthethweni.

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ILatin Pulmonary Hypertension Society yinkampani engenzi nzuzo eyasungulwa kwi-2005, ezinikele ekukhuthazeni ulwazi, inkxaso kunye nemfundo yokuphucula umgangatho wobomi bezigulane ezichaphazelekayo yi-pulmonary hypertension, kunye nezifo ezinqabileyo, iinkedama, zokuphefumla kunye nezifo ezingapheliyo eLatin America. nakwihlabathi jikelele. Uluntu luzibophelele ekusebenzeni njengombutho we-ambulera, ukulungelelanisa kunye nokuxhasa eminye imibutho edibeneyo okanye ehambelanayo esebenza kwimimandla ehambelana nezi pathologies. Ngoku idibanisa i-16 ye-Latin American pulmonary pulmonary hypertension imibutho.

• • facebook: https://www.facebook.com/LatinosConHP/
  • Twitter: https://twitter.com/LatinosConHP
  • LinkedIn: https://www.linkedin.com/company/17975409/admin/
  • Instagram: https://www.instagram.com/latinosconhp/

Umbutho weSizwe, waseNorway wezigulane kunye neentsapho zezigulane ezine-CHD. Ikakhulu basebenza ngokusasaza ulwazi kunye nokudala uluntu, kunye noxinzelelo lwegazi lwe-pulmonary (PH) ekubeni izigulane ze-CDH zihlala zine-PH.

• • facebook: https://www.facebook.com/cdhno
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I-National Health Action Force Nepal”(NHAFN)[राष्ट्रिय स्वास्थ्य कार्यबल नेपाल] yi-NG-NPO ebhaliswe kwi-Ofisi yoLawulo lweSithili, eKathmandu (iRegd. 230-2080/81) kwaye inxulumana neBhunga lezeNtlalontle 56573 (SWC) eneengcambu kunye nokuzibophelela kwiLizwe, isekwe ngoMbono kunye neMotto ephambili "yeNepal enempilo nephumelelayo". Ixhasa ubukhulu becala kwaye isebenzela uBulungisa bezeMpilo ngokubandakanywa kunye nobulungisa ekufikeleleni kukhathalelo lwempilo phakathi kwaBemi baseNepalese. Iqhutywa ngabasebenzi bezempilo abanezakhono eziphezulu, abaqeqeshiweyo bezempilo beli lizwe ngokusebenzisana nokusebenzisana. Liqela lokuphendula elikhawulezayo elinempendulo ekhawulezileyo ezinzileyo kunye nokukhalipha ekujonganeni neemeko zikaxakeka zempilo. Inendlela esebenzayo kwimiba enxulumene nempilo kwaye isebenza ukujongana nazo zonke izigulo kunye neenkalo ezinxulumene nempilo kunye nombono, impilo ephilileyo kunye neNepal ephumelelayo.

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  • Twitter (X): https://x.com/nhafnteam
  • LinkedIn: https://www.linkedin.com/company/national-health-action-force-nepal/

AAL. Yazisa kwaye inceda abantu abachasene ne-latex ekulawuleni ubomi babo bentlalontle kunye nokusebenza kunye neengxaki ezahlukeneyo ezinokuvela ngezibonelelo zempilo. Iphakamisa ulwazi phakathi kwabasebenzi bezempilo ngeentlanganiso, iingxoxo-mpikiswano, iinkomfa, iisemina kunye nopapasho ngomngcipheko odityaniswe ne-latex allergy. Iqokelela izatifikethi zeemveliso zasimahla kunye nezixhobo zelatex. Inceda ukukhangela kunye nokusika iindlela ezikhuselekileyo zelatex kunye nezakhiwo.

• • facebook: https://www.facebook.com/AALattice1https://allergiciallattice.org

I-PCD Patients Association yakwaSirayeli ngumbutho ozinikeleyo omele abantu abangaphezu kwama-400 abachatshazelwa yiPrimary Ciliary Dyskinesia (PCD). Ukumiselwa ukukhonza iimfuno ezizodwa zezigulane ze-PCD, umbutho usebenze iminyaka engaphezu kwamashumi amabini, kunye nendlela ehleliweyo yokukhuthaza kunye nenkxaso kwiminyaka elishumi edlulileyo. Eyona njongo iphambili yombutho kukuphucula ukuqonda kunye nokwazisa nge-PCD, ngakumbi iinketho zonyango lwayo kunye nobudlelwane neCystic Fibrosis (CF). Bazama ukufundisa izigulane kunye nababoneleli bezempilo malunga neendlela ezifanelekileyo zokulawula i-PCD, begxininisa ukubaluleka kokunyamekela komntu ngamnye.

• facebook: https://www.facebook.com/groups/162609269105064/?locale=he_IL

I-AEDSEO kuphela kombutho wesizwe ongenzi nzuzo ozinikele ekumeleleni izigulana ezine-EoE, esebenza ngokungakhathali ukuphucula ukuxilongwa kunye noncedo kwabo bathwaxwa yile pathology. Uzalwe kwiphulo le-consortium yeentsapho ezichaphazelekayo, injongo yabo kukuqinisa inethiwekhi yenkxaso eyanciphisa imingeni yeklinikhi kunye neengqondo ezihambelana ne-EoE, ukuphakamisa kakhulu umgangatho wobomi babo. Ngaphezulu kwamaqabane angama-580 asasazwa kulo lonke elaseSpain, kunye nobukho obukhulu eMadrid, eCatalonia naseValencia, i-AEDSEO inikezela ngeenkonzo ezibanzi ezivela kwiingcebiso zesondlo ukuya kwinkxaso yeemvakalelo kunye nentlalontle.

• • • facebook: https://www.facebook.com/aedeseo/?locale=es_ES
    • Instagram: https://www.instagram.com/aedeseo/
    • YouTube: https://www.youtube.com/@AEDESEO

Umbutho wabo ngumbutho wezigulane oqhutywa ikakhulu zizigulane kunye neentsapho zabo, kwaye sizama ukudala indawo yonyango engcono ngokusekelwe kubudlelwane phakathi kwamalungu abo. Imisebenzi yabo ephambili ibandakanya: Ukubamba inkomfa ye-PH yesizwe, Ukukhutshwa kweleta yeendaba, Ulawulo lwephepha lasekhaya, Imisebenzi yeNtsebenziswano kunye nemibutho yezemfundo kunye nemisebenzi yeNtsebenziswano kunye nemibutho yezigulane zaphesheya kunye nemibutho yezemfundo.

I-Italian Bronchiectasis Association APS ngumbutho wezigulane owasekwa ngoMeyi ka-2019 ngenjongo yokunceda abantu abane-non-Cystic Fibrosis-enxulumene (non-CF) bronchiectasis kunye neentsapho zabo, kunye nokwazisa ngesi sifo sincinci saziwa ngokuphefumla. ayinakubonwa ngaphandle kwe-CT scan kwaye ihlala ibhidaniswa nezinye izifo. Umbutho uqeshe iKomiti yeNzululwazi yee-multidisciplinary, elawula i-webinars ukuze yenze nzulu ulwazi kunye nolawulo lwe-bronchiectasis, inikezela isikhokelo kwiindawo ezikhethekileyo zonyango lwe-bronchiectasis, idala inkxaso phakathi kwezigulane ezivela kulo lonke elase-Italy ngokusebenzisa uluntu olukhathalela impilo ye-psychophysical. kunye nendlela ebizwa "Ubumelwane kunye neNtlalontle." Ithethathethana namaziko ukuze ithathele ingqalelo ukuqondwa okukhulu malunga nokuxolelwa kunye nokukhubazeka. Umbutho wethu unemibutho engaphezulu kwekhulu uninzi lwabantu basetyhini.

• • • facebook: https://www.facebook.com/AIBbronchiettasie/
    • Twitter: https://x.com/bronchiettasie
    • LinkedIn: https://www.linkedin.com/company/aib-associazione-italiana-bronchiettasie/
    • Instagram: https://www.instagram.com/aibronchiettasie?igsh=MTVib2RnbW9lMjAyYg==
    • YouTube: https://youtube.com/@associazioneitalianabronch2379?si=XBSTVWwGoh3tm8o8

I-COPD Foundation yaseMzantsi Afrika ebonelela ngamaqela enkxaso yezigulane, isebenza kubhengezo lwezigulane kwaye ibonelela ngemfundo yesigulana.

• facebook: https://www.facebook.com/groups/1965120670388092

Isiseko esincinci, ngenjongo yokuxhasa izigulana ezifunyanwe zifundisa ngolwazi lwesifo sabo, uthintelo, ulawulo kunye nonyango olusetyenziswayo. Baxhasa izigulane ezivela kulo lonke ilizwe, baqhuba iintlanganiso zenkxaso, bafundisa iintetho kunye nenkxaso yeengcali zonyango kunye nabaqeqeshi bezempilo, kwaye baqhuba amaphulo okwazisa malunga nefuthe lezifo, ezixhaswa ngamajelo. Banikezela kwiNdibano yamaSekela isicelo soMthetho wokuxhasa izifo zolusu. Kwaye iphumelele ekuyifumaneni yamkelwe kwaye yamkelwe nguMongameli weRiphablikhi uMthetho Nº370 (ngoLwesibini, ngoFebruwari 07, 2023) "Obhengeza umdla wesizwe izifo ezifunyenweyo nezizuzwe njengelifa, ukuphazamiseka kunye neemeko zolusu kunye nezihlomelo zalo."

• • • facebook: https://www.facebook.com/apep.panama/
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Isiseko saseColombia seZifo zeNkedama (i-Funcolehf) ngumbutho ongenzi nzuzo ozinikele ekuphuculeni umgangatho kunye nobuninzi bobomi beentsapho ezinezifo zeenkedama ezifana ne-Alpha 1 Antitrypsin isifo kunye ne-Cystic Fibrosis. Iinkonzo zalo: IiNkonzo zoLuntu lweNtlalontle Umsebenzi woQeqesho lweQela loMoya Iingcali zeNkxaso yeNkxaso edibeneyo yeFomu yoLuntu lweMpilo yokuHlola uVavanyo lwezoQoqosho kwi-Health Community Pharmacovigilance Ukongezelela, i-Funcolehf izinikele ekuthetheleleni, ingenelele kumgaqo-nkqubo woluntu, ibe liqumrhu lokujonga kunye nokulawula phambi komphathi wezempilo, iOfisi yeGqwetha Jikelele, iOmbudsman, iSebe lezeMpilo elixhasa iintsapho ezingaphezu kwe-1,000.

• • facebook: https://www.facebook.com/Funcolehf/
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  • Instagram: https://www.instagram.com/funcolehf/

I-Israel Lung Cancer Foundation yasungulwa ngo-Ephreli 2014. Ingumbutho we-apolitical ojongene nemiba enxulumene nezigulane ezisengozini okanye eziye zabandezeleka okanye zahlushwa ngumhlaza wemiphunga kunye neentsapho zabo. I-Israel Lung Cancer Foundation ixhasa isigulana se-oncology kunye nabakhathaleli bayo, kubandakanya uncedo kulwazi lwezonyango, ukwenza imibuzo malunga nonyango oluphezulu, uthintelo, ukufunyanwa kwangoko, kunye nokunye. Sililizwi kunye nobuso bezigulana ezinomhlaza wemiphunga, siseke uluntu olwabelanayo kwaye simele olu luntu kubachaphazelekayo. Umbutho ukhuthaza ukubandakanywa kokuhlolwa komhlaza wemiphunga kwinkqubo yezempilo yakwaSirayeli. Ngumbutho ongenzi nzuzo, ozibophelele kwikhowudi yokuziphatha.

• • facebook: https://www.facebook.com/ilcfil

Baquka iindawo ezahlukeneyo ezifana:

I-Advocacy: Ukusebenza kunye nabenzi bomgaqo-nkqubo kunye nababoneleli bezempilo ukukhuthaza ukunyuka kwenkxaso-mali yophando, ukufikelela okuphuculweyo kwiinketho zonyango, kunye nokunciphisa iindleko zonyango.

Amaphulo okwazisa uluntu ngokubanzi: Ukusungula amaphulo okwazisa uluntu ngokubanzi malunga nefuthe lokuphazamiseka kokuphefumla nokopha kubomi bezigulane.

Izixhobo Zokufundisa Ngomonde: Ukuphuhliswa nokusasazwa kwezixhobo zemfundo, ezinjengeencwadana ezinemifanekiso, iincwadana neevidiyo, ukunceda izigulana ziqonde imeko yazo, iindlela zonyango ezinokukhetha kuzo, neendlela zokuzinyamekela.

Inkxaso yoNye-nye: Ukufanisa izigulane kunye nabaxhasi besigulane abaqeqeshiweyo abanokubonelela ngenkxaso enye, baphendule imibuzo, kwaye banike inkxaso yeemvakalelo.

Iimvavanyo zeklinikhi: Ukuququzelela ukufikelela kwizilingo zeklinikhi kunye nezifundo zophando ukuqhubela phambili ukuqonda ukuphazamiseka kokuphefumla kunye nokopha.
Ukuqokelelwa kwedatha: Ukuqokelela idatha yesigulana ukulandelela iziphumo, ukubeka iliso kwimpumelelo yonyango, kunye nokuchonga iindlela zokuqhubela phambili kwesifo.

• • • facebook: https://www.facebook.com/profile.php?id=100079973672968

I-Lung Foundation i-Australia kuphela kwesisa kunye nomzimba ophambili ophambili wohlobo lwayo e-Australia exhasa uphando olutshintsha ubomi kwaye inikezele ngeenkonzo zenkxaso ezinika ithemba kubantu abaphila nesifo semiphunga okanye umhlaza wemiphunga. Ukusukela ngo-1990, besisebenzela ukuqinisekisa ukuba impilo yemiphunga yeyona nto iphambili kubo bonke, ukusukela ekukhuthazeni impilo yemiphunga kunye nokuxilongwa kwangoko, ukukhuthaza utshintsho lomgaqo-nkqubo kunye notyalo-mali lophando, ukwazisa ngeempawu kunye nokuxhaphaka kwesifo semiphunga kunye nokulwela ukufikelela ngokulinganayo kunyango kunye nonyango. inkathalo.

• • facebook: https://www.facebook.com/lungfoundation?locale=en_GB
  • Instagram: https://www.instagram.com/lungfoundation/
  • Twitter (X): https://x.com/Lungfoundation
  • YouTube: https://www.youtube.com/@thelungfoundation
  • LinkedIn: https://www.linkedin.com/company/lung-foundation-australia/posts/?feedView=all

I-Association of Respiratory Nurses (ARNS) yasekwa kwi-1997 njengeqonga labongikazi ukuze baphumelele uluntu olukhethekileyo lokuphefumla, ukukhuthaza ukugqwesa ekusebenzeni, kunye nokuchaphazela umgaqo-nkqubo wezempilo wokuphefumla. I-ARNS iphinda isebenze ukuphembelela isalathiso sokhathalelo lokonga lokuphefumla. I-ARNS inikezela ngenethiwekhi exhasayo kwaye ikhuthaza ukwabelana ngolwazi, ukwenza okulungileyo kunye nentsebenziswano yophando ngewebhusayithi kunye nokuhlaziywa kwe-imeyile rhoqo. I-ARNS ixhasa amalungu ayo ngokukhuthaza ukunxibelelana nezinye iingcali zokuphefumla kunye nemibutho. I-ARNS ikhuthaza uphando ngokubonelela amalungu ayo ngeebhasari. I-ARNS ikhuthaza kwaye ikhuthaza amanyathelo amatsha okuphefumula aphucula ukunakekelwa kokuphefumula kwizigulane. I-ARNS iqhutywa ngabongikazi babongikazi. Ubulungu obudibeneyo bunikezelwa kwiingcali zempilo ezidibeneyo kunye nabo basebenza kwindawo engeyiyo yeklinikhi ababandakanyekayo kukhathalelo lokuphefumla.

• Twitter: https://x.com/ARNS_UK
• Instagram: uk_arns

KwiLung Health Foundation, ukuzibophelela kwabo okungagungqiyo kukuxhasa nokuxhobisa abantu abaphila nesifo semiphunga kulo lonke elaseCanada. Ngoluhlu lwamanyathelo oluntu (ubonelelo lweenkonzo olululo lubandakanya iFitness For Breath malunga nama-500 abantu abaxhamlayo/ngonyaka, ukuqeqeshwa kweCOPD, amaqela enkxaso yezigulane kunye nenkqubo yoontanga kuontanga), iinkqubo zemfundo ezisezantsi (ukuxhasa amaqela enkxaso ngaphakathi emntwini izithethi, zisebenzela ukubonelela ngemfundo yabasebenzi bezempilo ngenkomfa yabo yonyaka iVeki yokuPhumla ngokuNgcono), uphando (baphinde basungula inkqubo yophando nge-800,000 yeedola / ngonyaka ukuza kuthi ga ngoku) kunye nenkxaso (banobubhengezo obuqinileyo bobukho boburhulumente kunye nephondo - kwaye bakwanobhala kwi-National Lung Health Alliance), baphakamisa ulwazi kunye nokukhuthaza indawo enovelwano kwabo bachaphazelekayo kwiimeko zemiphunga, kubandakanywa nabanonopheli babo. Bazinikele ekuphuculeni impilo yemiphunga yabantu baseCanada.

• facebook: https://www.facebook.com/lunghealthfoundation/
• LinkedIn: https://www.linkedin.com/company/lunghealthfoundation/
• Instagram: https://www.instagram.com/lunghealthfoundation/
• YouTube: https://www.youtube.com/channel/UCH4Ap1iIYRH9n0KSrT66v6Q

Umbutho wokuphefumla wasekwa ngenjongo yokwenza ubomi bube lula kwizigulana kunye neentsapho zabo ezinezifo zokuphefumla:
I-asthma, i-COPD kunye ne-bronchiectasis kunye nokuncedisa ukumelwa kwabo ngokubambisana kumaziko ezonyango kunye namaqumrhu karhulumente, ngobuchwephesha, ubulungisa, ukungafihli kunye nokholo endleleni. KwaSirayeli kukho malunga nesiqingatha sesigidi sezigulane ezineCOPD kunye nezigulana ezisisigidi ezine-asthma.

• facebook: https://www.facebook.com/profile.php?id=100087469303499

I-FEDERACION COSTARRICENSE DE ENFERMEDADES RARAS yintlangano ye-ambulera ejongene nokubonelela ngenkxaso ebanzi kwimibutho yezigulane ezinqabileyo kunye neentsapho zabo, ukunika izibonelelo, ulwazi kunye nesikhokelo sokujongana nemingeni ehambelana nezifo ezinqabileyo, ukuqinisa amandla eenkokeli zemibutho yezifo ezinqabileyo, ukubonelela ngeenkqubo zoqeqesho, iingcebiso kunye nokucebisa ukuphucula amandla abo okuxhasa abantu abanezifo ezinqabileyo kunye nokuphembelela imigaqo-nkqubo yezempilo yoluntu enxulumene nezifo ezinqabileyo, ukukhuthaza amalungelo kunye neemfuno zezigulane kunye neentsapho zabo. Bajolise ekunciphiseni ibala kunye nokukhuthaza ukuqonda okukhulu kunye nomanyano kwizigulane. Banemibutho enxulumene neshumi elinanye kwaye malunga namakhulu amabini ezigulane ezinezifo ezinqabileyo okanye ezinqabileyo kakhulu.

• facebook: https://www.facebook.com/federacionenfermedadesrarascr/about

I-PinkTree Foundation ngumbutho wezigulane ezingenzi nzuzo ogxile kwimpilo yemiphunga. Njengoko igama libonisa "uMthi oPinki" uthetha imiphunga ephilileyo. Injongo yeSiseko kukubonelela ngolwazi kunye neenkonzo kwizigulana ezifunyaniswe iimeko zempilo yemiphunga kunye nokubonelela ngezifo kunye nolawulo lwezigulane ukuqinisekisa ukuba banomgangatho ongcono wobomi.
Ugxininiso kwinqanaba lokuqala luya kuba kwizifo ezifana ne-Asma, i-COPD, i-Obstructive Sleep Apnea kunye ne-TB ye-Pulmonary. Njengoko beqhubela phambili, injongo kukugxila kwezinye izifo ezifana noMhlaza weLung kunye neCachexia kwiSifo sePhepha. Kwi-PinkTree Movement, injongo kukudala ulwazi kunye nemfundo phakathi kwezigulane kunye nabo bazikhathalelayo.
Ubhengezo lwesigulane ngowona mxholo uphambili kwiPinkTree kwaye bangathanda ukusebenzisana nemibutho ekhuthazwa ngokulinganayo ekusebenzeni ekulawuleni impilo yemiphunga.
E-PinkTree, umdla wesigulana uza kuqala.