I-FUNDEM yinkampani engenzi nzuzo enikezela iinzame zayo kwintlalontle yabantu abaneendleko eziphezulu kunye nezifo ezingapheliyo zeenkedama, ukubonelela ngeenkqubo ezijoliswe kwizigulane kunye nabanonophelo; ezifana neenkqubo zokufikelela, ukubeka iliso, inkxaso kwiinkonzo ezahlukeneyo ezifunwa sisigulane, ukukhapha kunye nolwazi malunga ne-pathologies. Kwaye kunye nezempilo kunye neenkonzo zentlalontle ezinefuthe elihle kwintlalontle kunye nomgangatho wobomi. I-Fundem yadalwa ngo-Matshi 31, 2006, emva kokuba iqela lezigulane libonise iimfuno kunye neemeko eziye zachaphazeleka emva kokuxilongwa kwaye abasunguli bayo bathatha inyathelo lokuqala lokudala umbutho oza kwanelisa iimfuno eziye zaqwalaselwa. Okwangoku banenani lezigulane ezingama-5,000 kwaye ngokusebenzisa uthungelwano loluntu izigidi ezi-5.5 ziye zafundiswa malunga ne-pathology kunye nenkathalo yazo. Ifumaneka kwisixeko saseBogotá, nangona kunjalo basebenza kwinqanaba likazwelonke.

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I-Apav liziko elibonelela ngenkxaso kwizigulana kunye neentsapho. EArgentina kukho malunga nezigulana ezingama-87 eziqhagamshelwe nathi.

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I-Beijing Aixike Pulmonary Hypertension ye-Rare Disease Care Centre ngumbutho wokuqala wentlalontle yoluntu e-China ukubonelela ngenkxaso kunye noncedo kwizigulana ezine-pulmonary hypertension. Kwi-2009, yaqalwa kwaye yasekwa zizigulane ezine-pulmonary hypertension, amaqela ahlukeneyo kunye nabantu abanenkathalo kwilizwe lonke. Ngo-2013, yavulwa ngokusemthethweni eBeijing. U-Aixike uye wakhawulezisa ukwaziswa, uphando kunye nophuhliso kunye nokufakwa kweziyobisi kwi-inshurensi yezonyango ngokwenza uluhlu lwemisebenzi yemfundo kunye nopapasho olufana neklasi yeBlue Lip, iNkqubo yoLung yokuzalwa ngokutsha, i-Blue Lip Photography Exhibition, kunye ne-World Pulmonary Artery Day. Inkqubo iye yaphucula uluntu lwezonyango kunye nokuqonda koluntu malunga ne-pulmonary hypertension kunye nezifo ezinqabileyo, kwaye ngokuthe ngcembe iphucule umgangatho wobomi bezigulane zaseTshayina. Ngoncedo lwabantu abanenkathalo, baya kuqhubeka nokukhusela amalungelo alinganayo kunye nomdla wezigulane kukhathalelo lwezonyango, imfundo, umsebenzi, ukuhamba, njl., kunye nokukhuthaza ukwenza izigqibo ngokubambisana phakathi koogqirha kunye nezigulane kunye nokuphuculwa kweenkqubo ezinxulumene nazo. Okwangoku, ngaphezu kwe-2,000 yezigulane kunye neengcali zonyango ze-100 zijoyine.

• • Wechat: iseekph

I-Rare Diseases Foundation yase-Iran (i-RADOIR) yasekwa kwi-2008 njengezigulane zokuqala kunye nezigulane ezinqabileyo kuphela ezingekho phantsi kukarhulumente ngumfi uGqr Ali Davoudian. Emva kweminyaka eyi-2 yeendlela zelizwe kunye nemisebenzi esebenzayo, i-RADOIR yamkelwa ukuba iqalise intsebenziswano yamazwe ngamazwe. UGqr. Ali Davoudian uzuze ubulungu bamazwe ngamazwe e-EURORDIS, i-RDI, i-ICOD kunye nesimo sokubonisana kwi-ECOSOC kunye njl ... "Iklinikhi eYodwa yaseNader" iphuhliswe kwaye iqhutywa ngumsunguli we-RADOIR ixhasa i-RADOIR kunye nezigulana ezinqabileyo ezineenkonzo zonyango zeeyure ezingama-24.

Injongo ye-Allergies yaseQuébec kukukhuthaza ukhuseleko kunye nokuphucula umgangatho wobomi babo kufuneka bajamelane nokutya okungahambi kakuhle, ngolwazi, inkxaso, imfundo, uqeqesho kunye neenkqubo zokwazisa. Liziko laseQuebec elikhokelayo ekubhekiselele kulo kukwaliwa kokutya, kwaye lidibanisa abantu abangalimaziyo, iingcali zezondlo, oosokhemesti, amaziko - izikolo, iindawo zogcino lwemini, izibhedlele - kunye neenkampani zokutya.

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I-Asthma kunye ne-Allergy Foundation yaseNtshona Afrika isebenza njengeqonga labaguli abanesifo sombefu kunye nabantu abaphila ne-allergies eGambia, eSierra Leone, eLiberia naseGuinea Bissau, ukuze bakwazi ukujongana nemingeni emininzi abajongene nayo ngokudibeneyo. Phakathi kweenjongo zabo kukubonelela ngeenkonzo zonyango ngokuzithandela kubantu abanesifo sombefu kunye nezinto ezingahambisaniyo nemizimba yabo nokubanceda ukuba babe sempilweni kwaye basebenze, babe nemveliso kwaye bakwazi ukuzithemba kuluntu. Basebenza ngesandla-kwiglavu kunye norhulumente wosuku, amaziko asekuhlaleni, imibutho yamazwe ngamazwe, kunye nee-philanthropists ukubonelela ngokuziphatha, izinto eziphathekayo kunye nenkxaso yemali kubantu abane-asthma kunye ne-allergies. Ngapha koko, bazama ukuhlaziya rhoqo idatha malunga nokuxhaphaka kokwenyani kwe-asthma e-Gambia ukuze urhulumente aqonde iziphumo zolu mthwalo unyukayo wesifo kunye nokuphanda ngokubaluleka okuhambelana nemiba eyingozi enjengokukhula kwedolophu kumgaqo-nkqubo wabo kunye nokucwangciswa kwezempilo. iimpendulo kulo mngeni.

I-HCAN yasungulwa ngombono wokuseka inkqubo yokunakekelwa kwezempilo eNepal engagcini nje kuphela kodwa iqinisekisa ukulingana kubo bonke. Iqela lethu lenziwe ngabasebenzi bezonyango abazinikeleyo abaqhutywa luthando ekwabelwana ngalo ukwenza utshintsho olulungileyo kunikezelo lwezempilo, imfundo yezonyango, kunye nempilo yoluntu kulo lonke elaseNepal.

Ezi nkalo ziquka uphuhliso lwemfundo yezonyango, ukukhuthaza ukulingana kwezempilo, ukuxhotyiswa kwabasetyhini, inkxaso yemfundo yabantwana, ucoceko lokusingqongileyo, ukukhuthaza ubunkokeli bolutsha, ukupheliswa kwentlupheko, kunye nokusukela uphuhliso lwamandla oluzinzileyo.

Okwangoku, sigxininise kulawulo oludibeneyo noluzinzileyo lweemeko ezingapheliyo ezifana noxinzelelo lwegazi, i-COPD, kunye nesifo sikashukela. Ezi meko zenza umthwalo omkhulu kwimpilo yabemi, kwaye sikholelwa ukuba ukujongana nazo ngokubanzi kubalulekile kwintlalontle kunye nophuhliso lweNepal.

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ISiseko soNcedo loLuntu kunye noSapho (NGO) nguMbutho waseGhana ongekho phantsi kolawulo lukarhulumente kunye nomxholo wehlabathi kunye nowengingqi ocinga ngoku uchongwe ngokukodwa ngokukhuthaza ukuxhotyiswa kwabasetyhini, uluntu kunye nolutsha ukuba balawule imiba enxulumene nophuhliso lwabo kunye nokuthethelela kunye nokusebenza. ngamalungelo kunye nentlalo-ntle; ukukhuthaza kunye egameni labantu abatsha, kummandla wempilo yengqondo, indawo, impilo, imfundo, utshintsho lwemozulu, kunye neminye imiba ehambelanayo echaphazela uphuhliso lwabo luphela. Bajonge ukusingatha owona mzamo mkhulu wokufikelela kulutsha lwaseGhana ukuze luxabise kwaye luphendule kwiimfuno zabo zamalungelo ezempilo ngokwesondo ngekamva eliqaqambileyo kunye nokukhuthaza uphuhliso lwabo olusingise kwisakhiwo sesizwe.

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Umbutho we-DAH ngumbutho ongenzi nzuzo oqokelela izigulana ezinesifo soxinzelelo lwegazi emiphunga kulo lonke elaseBosnia naseHerzegovina. Amalungu ombutho, ukongezelela kwizigulana, amalungu eentsapho zawo, kwakunye noogqirha. Umsebenzi wabo kukuphakamisa ulwazi malunga noxinzelelo lwegazi lwe-pulmonary, ukukhomba iimeko ezinzima zezigulane, ukulwa namalungelo alinganayo kuzo zonke izigulane, kunye nokubonelela ngenkxaso kwizigulane imihla ngemihla.

• Facebook URL : https://www.facebook.com/plucnahipertenzijabosneihercegovine
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I-Allergienet yintlangano yesigulane saseBelgium, iqela lokuzinceda kunye nentlangano yokukhuthaza bonke abantu abane-allergies (i-atopy kunye nohlobo lwe-2 yokuvuvukala). Abaphulaphuli esijolise kubo baquka zonke izigulana ezineempawu eziguquguqukayo okanye iimeko ezinxulumene nazo. Sisebenza ngokukodwa kwinkalo ye-atopic dermatitis, i-urticaria engapheliyo, i-allergies, i-hay fever, i-allergies yokutya, kunye ne-anaphylaxis. Amalungu ethu asebenzayo ngamavolontiya, kwaye sijonge ukubonelela ngoncedo apho lufuneka kakhulu. Oku kunokususela kwinkxaso yobuqu kunye nesikhokelo, ukwenza amaphulo okwazisa, ukuya kuthethelelo lwesizwe nayo yonke into ephakathi. Samkelwa ngokusemthethweni njengemibutho yesisa eBelgium kwaye singamalungu eFlemish Patients' Platform. Sifuna ukukhuthaza nokuxhasa uphando kunye nentsebenziswano nabanye abachaphazelekayo. Sizama ukuxhobisa izigulana, umgangatho ophuculweyo, kunye nendlela ebanzi. Sinika uncedo kunye nenkxaso kubo bonke.

• Facebook URL: https://www.facebook.com/Allergienet
• Instagram URL: https://www.instagram.com/allergienet/
• YouTube URL: https://www.youtube.com/@allergienet3578

I-PHRDA ibonelela; I-Hotline / ukubonisana malunga nokuqinisekiswa kokuxilongwa, ukufikelela kumayeza, ukufikelela kwizixhobo zonyango, kunye nokufikelela kwi-transplantation. Ubhengezo/ubheno kumagunya karhulumente nasekuhlaleni ukukhusela amalungelo kunye nomdla wezigulane. Ukubonisana nogqirha wengqondo. Ukunceda ngamayeza kunye nezixhobo zonyango ngobungqina obubhaliweyo bemfuno kunye nolandelelwano lwezinto eziphambili. Ukubonelela nge-asylum yesikhashana (ngexesha lomthetho we-karate e-Ukraine). Ukulungiselela iintlanganiso zezigulane. Ukulungiselela amagumbi okuncokola ukuze kuncokolwe ngesigulana. Umbutho uqeqesho kunye internship oogqirha Ukrainian eUkraine nakwamanye amazwe.

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Lo mbutho ufuna ukuphembelela kakhulu imigaqo-nkqubo yelizwe, njengombutho ongenazo iingxabano zomdla, ukukhuthaza ukusetyenziswa kwelungelo lempilo phambi kwabenzi bezigqibo kunye nabemi. Iiprojekthi zabo zijolise ekuLawulweni kweCuba, ukuPhelisa ukutshaya, ukungquzulana komdla, ukusetyenziswa kakubi kotywala, ukuvinjelwa kwamafutha eTrans, i-Universal Health Coverage, izifo ezingasuleliyo, i-asthma kwaye kungekudala, ukuHamba kunye noKhuseleko lweNdlela. Ngo-2018 baye bafumana iMbasa yeBloomberg Cessation kwiNkomfa yeHlabathi yeCuba okanye yezeMpilo, ebibanjwe kweyoKwindla ka-2018 eKapa, ​​eMzantsi Afrika. Kutshanje, ngoMeyi walo nyaka uSalud Justa Mx ufumene imbasa yoSuku lweCuba lwe2023 lweHlabathi, enikezelwa yi-PAHO. Umlawuli wayo, u-Erick Antonio Ochoa, ufumene iMbasa yeHlabathi kaJudy Wilkenfeld ka-2023. Lo mahluko wawongwa kumntu waseMexico okokuqala.

• Ikhonkco likaFacebook: https://www.facebook.com/SaludJustaMx/
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Lo mbutho ujolise ukuqalisa ubhaliso lokuqala lwabantu abafunyanwe benezifo zokuphefumla. Ukubonelela ngenkxaso kwizigulana ukuze zifikelele kukhathalelo lwezonyango olukhethekileyo, zixhobise isigulana ngokufundisa ukuqonda nokulawula isifo sazo. Bakwasebenzela ukwazisa uluntu. Bakwaqhuba iintshukumo zokwazisa ukuhlaziya ukhathalelo lwesigulana ngokwenkqubela phambili yesayensi. Ququzelela amaqela enkxaso kunye nenkxaso yengqondo. Yenza umanyano kunye nemibutho yoluntu kunye nezonyango ukomeleza iziko.

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Eyona njongo iphambili yeChile Asma Fundacion kukukhuthaza ilungelo lomntu wonke kuluntu, endilisekileyo kunye nempilo esemgangathweni. Zombini kwiinkalo zonyango, amayeza, kunye nezentlalo, apho sonke isigulana sokuphefumla sinokufikelela kwinkqubo yezempilo echanekileyo. Ezinye zeenkonzo abazinikezelayo kuluntu lwabo lwesigulane kukufundisa, ukwenza kubonakale, ukukhokela, kunye nokukwazi ukwabelana ngamava phakathi kwezigulane ngokwazo. Basebenza kwi-intanethi kunye nomntu.

• Facebook URL: https://www.facebook.com/Fundacionchileasma/
• Instagram URL: https://www.instagram.com/fundacionchileasma/

NguMsebenzi we-Right2Breathe® ukubonelela ngeMfundo, uLwazi, ukuHlolwa kwaMahla, kunye neZibonelelo kubantu abafunyenwe ngoku okanye abasengozini enkulu yokufunyaniswa nesifo sokuphefumla. Sikholelwa ukuba wonke umntu uneRight2Breathe. Isaci sakudala esithi, “Xa usenza into oyithandayo, akusebenzi usuku olunye ebomini bakho” sisebenza ngaphezu kokhetho lomntu lomsebenzi. Sikholelwa ukuba umhlaba uyindawo engcono xa abantu besebenzisa izipho zabo kunye neetalente zabo ukulandela amaphupha abo. Injongo yethu kukukhuthaza, ukufundisa, kunye nokuxhobisa abantu abaphila nesifo semiphunga ukuze bavuselele umlilo ngenxa yeminqweno yabo ngelixa benikezela ngolwazi oluyimfuneko ukuze bathathe inyathelo. Ukongeza kuluntu lwezigulane, sibonelela ngemfundo kubanonopheli ababaxhasayo kunye neekliniki ezinyanga abantu abaphila nesifo sokuphefumla.

• Facebook URL: https://www.facebook.com/Right2Breathe.org
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• LinkedIn URL: https://www.linkedin.com/company/right2breathe/
• Instagram URL: https://www.instagram.com/Right_2_Breathe/
• Isiteshi se-YouTube: https://www.youtube.com/@right2breathe349

Ulwazi lweNkampani: I-Non-Communicable Diseases Alliance Kenya (NCDAK) nguMbutho ongekho phantsi koRhulumente, obhaliswe ngo-2012 phantsi kwecandelo le-10 le-NGOs Coordination Act 1990, inombolo yobhaliso OP.218/051/12-0125/8213. Ngombono we-"NCD-free Kenya", i-NCDAK ifuna "ukuba ngumbutho okhokelayo wobulungu eKenya kuyo yonke imiba ephathelele kwii-NCDs", ukuze kube negalelo ekunciphiseni umthwalo othintelwayo wokugula, ukufa kunye nokukhubazeka ngenxa yee-NCDs. ngokusebenzisa intsebenziswano yamacandelo amaninzi kwinqanaba le-county kunye nelizwe, ukuqinisekisa imigangatho ephezulu efikelelekayo yezempilo kunye nemveliso kumjikelezo wobomi ozinzileyo wophuhliso lwentlalo noqoqosho. Ngaloo ndlela i-NCDAK ifuna ukukhuthaza imeko-bume yomgaqo-nkqubo osabelayo we-NCD ngokwenza oku: ngentelekelelo, ukuxhotyiswa ngezakhono kunye nolawulo lolwazi, uthethathethwano olunokuba luncedo lwabantu abaphila nee-NCDs kunye nokuhlanganisa izixhobo. Njengombutho okhokelayo kwii-NCD zolawulo, kugxilwe ekuqokeleleni ubungqina obukhoyo obuza kubhengezo ekufikeleleni.

• facebook: https://www.facebook.com/NCDAK2013
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• LinkedIn: https://www.linkedin.com/company/75047265
• Instagram: https://www.instagram.com/ncdalliancekenya/
• Isiteshi se-YouTube: https://www.youtube.com/channel/UC-tHpCIulS2i6LhtRS6cB6A/

ISiseko saseColombia soMhlaza weLung, i-Asthma, i-COPD, kunye nezinye izifo zokuphefumula - i-INSPIRAT, ngumbutho ongenzi nzuzo onenjongo yophuhliso lwentlalo kunye nokumelwa kwabantu kunye neentsapho ezichaphazelekayo zizifo zokuphefumula. Ngokusetyenziswa ngokufanelekileyo kwabantu, ubugcisa, kunye nemithombo yezemali, isiseko sibonelela ngeenkonzo ezisemgangathweni, ngokulingana kunye nethuba kubemi, igalelo ekupheliseni imiqobo ekufikeleleni kwiinkonzo zempilo kunye nokuphuhlisa inzululwazi, inkcubeko, ukuzonwabisa, i-innovative, kunye nentlalontle. imisebenzi yenkonzo ukuxhasa ngophando, unyango, kunye nokhathalelo lwezifo zokuphefumla ukuxhasa ngophando, unyango, kunye nokwazisa ngezi zifo.Isiseko silandela iinjongo zesisa, umdla oqhelekileyo okanye usetyenziso, ukuphuculwa komgangatho wobomi, kunye nomdla wentlalontle. Ingenelela kwii-pathologies ezinjengomhlaza wemiphunga, isifuba, i-COPD, intsholongwane yokuphefumla ye-syncytial, i-rhinosinusitis engapheliyo ene-nasal polyps, i-pulmonary fibrosis, kunye ne-Alpha-1.

• facebook: https://www.facebook.com/FundacionInspirat/
• Twitter: https://twitter.com/InspiratCol
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I-Fundación Padece ibonelela ngoncedo kwizigulane, ezifunyaniswe kwaye zifuna ukuxilongwa, izifo ezingapheliyo ze-immune-mediated dermatological. yezifo ezingapheliyo ze-immune-mediated dermatological. Ikhuthaza impilo-ntle kunye nempilo edibeneyo yabo baphethwe yi-Hidradenitis Suppurative Hidradenitis, i-Psoriasis, i-Atopic Dermatitis, i-Vitiligo kunye ne-Chronic Urticaria, esebenza kunye noluntu lwezonyango.

• facebook: https://www.facebook.com/padece.chile
• Twitter: https://www.twitter.com/padece_chile
• LinkedIn: https://www.linkedin.com/company/82115247/

Instagram URL: https://www.instagram.com/padece.chile Nikezela kuQhakamshelwano

Injongo yoMbutho iya kuba ngolu hlobo lulandelayo: a) Ukuphuhlisa imisebenzi ekhuthaza ulwazi lwePulmonary Hypertension kunye nezifo ezinxulumene nemiphunga; b) Dibanisa izigulane kunye neentsapho ukuze kunye zibone kwaye zihlangabezane neemfuno zezigulane c) Xhasa amanye amaqumrhu anezohlwayo ezifanayo. d) Ukukhuthaza kunye nokuthatha inxaxheba kwimisebenzi ethanda umdla wezigulane. e) Cebisa kwaye uncede izigulana zifumane amayeza athile esigulo sazo. Sinobukho besizwe kwiRiphabhlikhi yaseCosta Rica

• Facebook: https://www.facebook.com/asocrhipertensionpulmonar

Umbutho wezifo zesikhumba kunye ne-allergies ubonelela ngolwazi, umthetho, kunye nenkxaso yengqondo kwizigulane ezine-asthma kunye ne-allergies iminyaka engaphezu kwe-10. Basebenzisana nee-arhente zikarhulumente ukuphucula ukufikelela kunyango olusebenzayo kwizigulana. Babamba imisitho emininzi, njengesikolo sezigulane, iinkomfa, uphando ngeengxaki zezigulane, uncedo ekufumaneni unyango. Umbutho unezibonelelo ezininzi kunye nababhalisi abaninzi phakathi kwezigulane. Bakwangamalungu e-GlobalSkin kunye ne-IFPA.

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