Ingxelo yesiShwankathelo soTshintsho loLwazi lwe-EoE-iGlobal Allergy & Airways Platform Patient

iinjongo

Ukwakha kwiinzame ezikhoyo kunye nokunceda ukuqhuba umfutho kwi-EoE, i-Global Allergy & Airways Patient Patient (GAAPP), iRegeneron, kunye ne-Sanofi Genzyme ibambe i-virtual yokuqala. I-EoE Knowledge Exchange nge-16 kaSeptemba 2021. I-EoE Knowledge Exchange ibandakanya ii-PAG zehlabathi jikelele, zengingqi, nezesizwe kunye nemibutho yezonyango, kwaye ijolise eku

Dibanisa abachaphazelekayo abaphambili kuluntu lwe-EoE kunye nokwandisa intsebenziswano
Yenza ulwazi olutsha ukunceda ukwandisa ukuqondwa kwe-EoE kwihlabathi
Ukuseka iindawo eziphambili zehlabathi kwaye uchonge imisebenzi efunekayo ukuphakamisa

imvelaphi

I-Eosinophilic esophagitis (EoE) yinto engapheliyo kwaye inenkqubela uhlobo lwe-2 isifo sokuvuvukala eyonakalisa i-esophagus kwaye ithintele ukuba isebenze ngokufanelekileyo.(1) Ekuhambeni kwexesha, ukuvuvukala kohlobo lwe-2 ngokugqithiseleyo kubangela ukukrala kunye nokuncipha komqala, okwenza kube nzima ukuginya. ihlabathi(2); nangona kunjalo, oku kulindeleke ukuba kwande.(1)

Okwangoku, i-EoE idla ngokubhidaniswa kwezinye, iimeko eziqhelekileyo zokugaya kunye neempawu ezifanayo, ezifana I-acid reflux okanye isifo se-reflux ye-gastroesophageal (GERD). Ngenxa yoko, abantu abahlala ne-EoE bahlala bejongana nokulibaziseka okanye ukuxilongwa okungalunganga, ebonisa ukuba ukuxhaphaka kwesi sifo kuphezulu kunokuba kuqondwa ngoku.4

Kukho ezininzi amaqela axhasa izigulane (PAGs) kunye nemibutho yonyango eqhuba iinzame kwi-EoE, kunye nabaninzi benza oko njengenxalenye ye-ajenda ebanzi yokwaliwa.

Nangona kunjalo, njengoko i-EoE isisifo esitsha, uluntu lwezigulane luhlala luncinci kwaye luhluke xa luthelekiswa nezinye iimeko ezingapheliyo ezaziwa kakhulu. I-EoE nayo ibingekho kwiingxoxo zomgaqo-nkqubo, kwaye ngelixa I-EoE ngamanye amaxesha igutyungelwa phantsi kwe-ajenda yomgaqo-nkqubo obanzi wokwaliwa kunye nowomoya, iimfuno ezithile zezigulane ze-EoE azihoywa njengeemeko ezixhaphake kakhulu, njengokutya kokutya, zihamba phambili. Ngenxa yoko, ulwazi malunga ne-EoE lunqongophele kwaye kusekho imfuno ephezulu engafezekiswanga phakathi kwezigulane.

nxaxheba

I-EoE Knowledge Exchange yadibanisa abameli be-13 abavela kwi-PAGs kunye nemibutho yezonyango evela kumazwe asibhozo, inikezela ukumelwa okuvela eMntla Melika, eYurophu nase-Australia.

UTonya A. Iifestile, UMongameli, IGlobal Allergy & Airways Patient Patient (GAAPP)
Maryam Hassimu, iNkokeli yeMicimbi yoLuntu yeHlabathi, i-Immunology, Sanofi Genzyme
Ilana Tabak, UMlawuli, uGunyaziso lwezigulane, i-Immunology, I-Regeneron
URebeca Andrádas, INtloko yeeProjekthi zamazwe ngamazwe, Umbutho waseSpain we-EoE (AEDESEO)
UGqr. Arjan Bredenoord, Mongameli, Umbutho waseYurophu weEosinophilic Oesophagitis (EUREOS)
Amanda Cordell, Itrasti kunye noSihlalo, Inethiwekhi ye-EOS
Eleanor Garrow-Holding, UMongameli kunye ne-CEO, Iqela le-Allergy kunye ne-Anaphylaxis Connection (FAACT)
UGqr. Thomas Eiwegger, Usihlalo, iQela eliSebenzayo leBiologicals, IAkhademi yaseYurophu yeAllergy kunye neClinical Immunology (EAACI)
UJennifer Gerdts, Mlawuli Jikelele, Ukutya Ukwalana ECanada
UGqr. Roberta Giodice, UMongameli, Umbutho wamaTaliyane weeNtsapho ezichasene ne-Eosinophilic Esophagitis (ESEO)
USarah Grey, Umseki kunye noMongameli, I-AuseEE, Inc.
Ellyn Kodroff, Umseki, Iphulo elikhuthaza uPhando lweSifo seEosinophilic (CURED)
UGqr. Salvatore Oliva, Umbutho wamaTaliyane weeNtsapho ezichasene ne-Eosinophilic Esophagitis (ESEO)
USusanna Palkonen, Mlawuli, I-European Federation of Allergy and Airways Diseases Associations (EFA)
UGqr. Imke Reese, Ilungu leBhodi yeeNgcebiso zezeNzululwazi, Umbutho waseJamani weAllergy kunye neMbefu (DAAB)
UMary Jo Strobel, Mlawuli Jikelele, I-American Partnership for Eosinophilic Disorders (APFED)